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Tuesday, April 10, 2018

Cerebral Palsy Facts and Fun Stuff

Sept, 17,

VIA 
20,000 prize pool. Nominations for the World Cerebral Palsy Day Awards 2018 are now open. 

Aug. 28,

Disability rights activist says people think she doesn’t have sex because she has cerebral palsy — and talks pregnancy and feeling confident in her own skin
https://firenewsfeed.com/news/1923949

April 20,

Why does it seem more accepted to use Botox to treat symptoms of Cerebral Palsy compare to Medical Marijuana?

A few years ago, it seemed to be a "trend" to treat spastic CP with Botox injections. To me, this was an insane concept, to go inject poison into ones body for a temporary fix.  There are some people that would make the same argument of using Medical Marijuana for the same purpose.

To me, they are the some, Botox just seems safer since it is legal and a doctor administrates it. These two drugs are not cures and it troubles me that most of these studies have been conducted on children and not adults. I would rather suck a weed pop, every now and then just relax, nothing is a "cure".



April 10,

Giving a Voice to Cerebral Palsy and Chronic Pain



What My Scars From Cerebral Palsy Surgeries Mean to Me



March 22,

Brain Stimulation May Benefit Kids With Cerebral Palsy, Study Finds


Things to Ponder

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sept. 18
ABC Set To Premiere Show With Down Syndrome Storyline
If the “new normal” is having characters with disabilities appear in mainstream media, why do we still need to point it out? Maybe this has become a marketing strategy, to get peak people’s interest? I want people see my art first, but at the same time they know I am an Artist with a disability. Maybe this is an attribute to draw attention to my artwork and what makes it stand out. When it comes to marketing everyone needs a hook.

July 10,
Nike releases epic commercial to celebrate U.S. World Cup victory, fight for equality

July 5,
On this day 55 years ago, America finally outlawed segregation
In my mind the end of segregation also helped People With Disabilities, since we also face discrimination.  This is why I support the marriage equality movement, because  legally Dena and I have no rights as a married couple.  If something happened to
either one of us, we have to trust that our families respect our union and let one
another carry out our wishes.

June 27,
Stork Flies 8,000 Miles Every Year to Reunite With His Wounded Soulmate

June 19,
Artist Receives Her Heart Donor’s Art Supplies, Presents Parents With Their Son’s Smiling Face

May 7, 2018


April 5,
How America’s individualistic streak shaped design for disability

 March 28,
Amazon Rolls Out Disability Hiring Initiative 
This might make the Trump Admin. want to defund SSI/SSDI since they can defund the Special Olympics due to the fact that they get funds from sponsorships!!???


March 25,
Dr. Phil dismisses interabled couples and social media shows him
Dena and I watched this show together and did find Dr. phils' open set of questions troubling, but, more concerning for us was that we could not relate to them us a couple. For me I wanted Dr. Phil to ask the guy. how do you show her appreciation, or how do you contribute to there relationship? I was not impressed with how Dr. Phil "advised" this couple, but I was more frustrated with the couple's toxicity towards each other.

 


Jan. 30 2018,


Jan. 15,
This always happens many times with Dena and me, the smallest things in life can become the biggest test. We do express how we feel to businesses, not just to complain but rather to bring awareness.

Jan. 13,
We love this too! Inclusion in every area is needed, including wedding shop display windows #wheelchairbride

Oct. 30,
 It is time for our communities to come together and work as one, since our government cannot!  This is the only way to stop all of the negativity in are country.
Wasi Mohamed is the executive director of the Islamic Center of Pittsburgh. This evening, at a community event, in front of thousands of people gathered to mourn the 11 Jewish souls murdered yesterday, he not only announced that the Muslim community had raised over $70,000 to pay for funeral and medical expenses of the victims, he also offered the protection of the Muslim community at Jewish services- literally offering to stand outside our synagogues— as well as to escort anyone there and back or even to a grocery store if they were scared.

He spoke so beautifully, so sincerely. The audience rose as a whole to applaud him.

I am honored to have the opportunity to work with him.


 Oct. 29,
When I was growing up, I was taught this was a sign of freedom of expression and acceptance, but in recent years it has became a sign of hate and power. If people think it is disrespect to kneel in silence protest, why not get more upset when hate groups march holding the flag? I always see King Trump wearing a flag pin, but really he is just using it as a way to enforce will and have his way.  I think we life in a time that people forgot why we were the land of the free and tolerance of all.


July 6,
#45 is the biggest embarrassment to the human race. As soon as he won, I said Honey we are moving to a cave. Really I try to keep my bitches to disability issue so my voice does not become like a mosquito, but that is becoming impossible.


June 12,

Depression Isn’t Sadness and Suicide Isn’t a Cry For Help… by Steve Safran


June 7,


People with disabilities make up about 20% of the population, but are featured in less than 2% of the images we see in the media. The images we see are far from real, and far from enough. Let’s change that.

May 31,

 How to Spot the Language of Depression
 April 29,

A young woman locked up in a mental hospital, shocks doctors by revealing who she really is.
Ten Days in a Mad-House articles 


Exclusive: 10 Days In A Madhouse Illustrated Reading of Nellie Bly's Book on Blackwell Insane Asylum 

April 27,

So this popped up in my email, I am almost tempted to see what happens if I did apply for a permit. Imagine how crazy that would be, if a  guy with Cerebral Palsy can carry a gun in pubic "just in case". I think, I would have more support for that than I would to have wheelchair access to my corner adult book store.

April 10,

A Harder Death for People With Intellectual Disabilities



This is the first time I have seen an article talking about to downside of prolonging someone's life. These are the things I think about when the medical rights debate comes up.

Thursday, April 5, 2018

Disability Movement in Maryland

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Oct. 22,
VIA: @MdDDCouncil
Request for Public Comments on the Development of the 2021-2022 IACC Strategic Plan for Autism Spectrum Disorder (ASD)

The Interagency Autism Coordinating Committee wants your feedback on seven specific issues. They want to decide if federal programs and activities and/or partnership with community organizations may help address those issues.

Oct. 14,
VIA: @MdDDCouncil
Training Curriculum: Law Enforcement and People with Intellectual and/or Developmental Disabilities

Recently revised by the Ethan Saylor Alliance Steering Committee, this downloadable curriculum is available to train law enforcement and first responders on how to appropriately and effectively interact with people with intellectual and/or developmental disabilities.

Oct. 4,
Baltimore County to unveil plan requiring landlords to accept tenants with subsidized housing vouchers
It really is not fair living in HUD housing and watching new development going up all around the place you have to live since it is the only thing you can afford. Some Land Lords/managers just make it worse when they do not put moneys back into the buildings and act as you should be grateful for what you have.

Oct. 3,
The Association for Positive Behavior Support is sponsoring an online “Family Chat” on Oct. 15 at 8:30 pm. Cohosted with Parenting Special Needs, the chat will focus on improving family-school partnerships with a parent panel.

Oct. 1,
The Hospital Patient's Bill of Rights goes into effect October 1, requiring hospitals to inform patients of a list of their rights as patients MD hospitals, which are now uniform across all hospitals in the state. Read the rights here: http://marylandpatientrights.org

Sept. 26,
I wonder if this will decrease the willingness to hire PWDs since employers always are looking to get more for less. The other thing to point out to employers is that we already have insurance. I wonder of other regulations will change too, because the more income a PWD has other services decrease and rent goes up. It is just an unless cycle of never being able to get a head.

June 21,
Baltimore Metropolitan Region Fair Housing Survey
The Baltimore region is currently conducting a study about residents’ housing needs and experiences living, working, or going to school in the region. 
This survey is an important part of improving housing choices. It is not associated with a ballot issue or political poll. It is expected that the survey will take approximately 10 to 15 minutes to complete. At the end of the survey you can enter a chance to win a $100 Visa gift card!   

 Jan. 29, 2018.
Lessons Learned is a day long opportunity to hear about the initial results from this 5 year statewide research effort to improve education and employment outcomes for youth on SSI. 

Dec. 5,
When: Thursday, December 6th at 11am-1pm
Where: Severn Library; 2624 Annapolis Rd, Severn, MD 21144

The Self-Directed Advocacy Network of Maryland (SDAN) is a support and advocacy resource for the nearly 1100 people self-directing their services through the Developmental Disabilities Administration (DDA). SDAN welcomes all community members who have an interest in fostering the self-directed services option and works to connect people who are currently self-directing 
to the community around them.

Oct. 25,
You can VOTE! Learn all about overcoming voting barriers for people with disabilities with @Tuesdaywithliz. Liz discusses how to get to the polls and how early voting might be the right option for you. #policy4all #DisabilityVote18


Sept. 18, 
The @Orioles will become the first team in American professional sports history to incorporate Braille lettering into their gameday uniforms when they host @NFB_voice on Tuesday! pic.twitter.com/EliPQkPuLI
Sept. 6.
The EMPOWER Care Act Would Give People With Disabilities the Freedom They Deserve


Sept, 5
ADAPT, ACLU, and NCIL are here to support the Empower Care Act that is being addressed during today's Energy and Commerce Committee hearing. The Empower Care Act is a bill that will extend which helps fund nursing home transition across our nation to


Sept. 4
 Maryland Developmental Disabilities Council shared an event.

Tomorrow, Wednesday, September 5 at 10AM, the House Energy and Commerce Subcommittee on Health will hold a hearing on the EMPOWER Care Act (S. 2227/H.R. 5306), which would reauthorize the Money Follows the Person (MFP) program for the next 5 years.
The Money Follows the Person program has allowed 75,000 seniors and people with disabilities access services that allow them to leave institutions and live in the community.
Disability rights organizations are inviting activists to join them at 9AM tomorrow at the Capitol South Metro stop (corner of 1st and D Streets, SE) where you can get a "HOMES NOT INSTITUTIONS" t-shirt, and then walk to Rayburn House Office Building for the hearing to show your support for the MFP program. 

Aug. 29
Hussman Center for Adults with Autism


Aug. 14,
University of Maryland announces new center for students with disabilities 


May 25,

Maryland parents battle with school districts to get special education services for their children


April 5,

Maryland legislature must scramble to help quadriplegic man from Bethesda, who faces losing his job because of MD law.

Together We Can Make A Difference! Please support Maryland's SB 660 and HB 1280 Bills. Time is running out. These bills will help ensure that WORKING PEOPLE WITH DISABILITIES CAN KEEP BOTH THEIR NURSING SERVICES AND THEIR PAYCHECK.
STATUS UPDATE: SB 660 unanimously passed the Senate finance committee. HB 1280 is held up in the HGO committee and needs to be voted out ASAP identical to the recently approved amendments within SB 660 bill. HB 1280 must be identical to SB 660 and not include any new house amendments creating additional legislative delays.

To assure this happens, please email or call Chairwoman Shane Pendergrass (shane.pendergrass@house.state.md.us & 410-841-3139) of the HGO committee and Speaker of Delegates Michael Busch (michael.busch@house.state.md.us & 410-841-3800) asking both of them to pass an identical HB 1280 bill that is identical to the approved SB 660 bill and approved SB 660 amendments.

Wednesday, April 4, 2018

Original Photo-Litho Prints

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4/6/93

Dear Wheelchair,

Our relationship is love and hate. I hate you because you have to be so picky about where you can take me. I love you because you save my knees from getting tired and sore.

I know you hate me because how I treat you. You probably think you are unlucky to be my wheelchair, I always put you in trunks of cars, under buses, in dark closets and take you camping. You would probably like to be somebody else’s wheelchair where you sit at home. Think how adventurous your life has been.

Yours,
Dan k.

P.S.

Wait until we go bungee jumping!

My Precious 2008 Good & Evil 2008
Nurture, 2008 No, 2008