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Thursday, January 30, 2020

The Disability Movement Then, Now and Future 2020?

The Disability Movement Then, Now and Future 2020?
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Oct. 14,
Ford Foundation Launches First-Ever U.S. Disability Rights Program

The Ford Foundation today announced the launch of its first-ever grantmaking program focused on advancing the rights of people with disabilities in the United States, with an annual budget of $10 million. From 2018 to 2020, Ford has invested more than $50 million toward projects and organizations focused on disability and an additional $125 million to social justice organizations working toward disability inclusion. The launch of the U.S. Disability Rights program marks the next stage of Ford's sustained commitment to the community and wider efforts to transform the foundation toward disability inclusion in all of its operations and grantmaking.

October 13,
IRS Issues Final Rules For ABLE Accounts

Federal officials are firming up rules for a relatively new type of account that allows people with disabilities to save money without jeopardizing their government benefits.

The Internal Revenue Service issued final regulations this month spelling out details about how ABLE accounts should operate.

The accounts, which were established by the 2014 ABLE Act, allow individuals with disabilities to accrue up to $100,000 without risking eligibility for Social Security and other government benefits. Medicaid can be retained no matter how much money is saved in the accounts.

September 24,
Ginsburg Remembered For Impact On Disability Rights
Best known for standing up for women’s rights, U.S. Supreme Court Justice Ruth Bader Ginsburg also played an outsized role in ensuring the rights of people with disabilities, advocates say.

Most notably, Ginsburg, who died Friday at the age of 87, wrote the majority opinion in the landmark 1999 ruling in Olmstead v. L.C. The decision affirmed the right of people with disabilities to live in the community.

“This big moment, and (Ginsburg’s) staunch affirmation of the human dignity of people with disabilities and their rightful place in the community of their choice, fundamentally changed the course of the lives of hundreds of thousands of people with disabilities,” said Peter Berns, CEO of The Arc.

September 22,
Voters With Disabilities Face Barriers in 2020 From COVID-19
The world is on fire and I’m choking on fear and rage. In 2020, two aspects of my life have been politicized and thrust into the spotlight: ventilators and voting by mail. It’s wild to see how two things I have relied on for years are suddenly under threat in this political climate. They may seem like an odd pair, but they both enable me to participate in society as a disabled person.

The pandemic has exposed a number of truths: The nation’s infrastructure is inadequate, leadership from the White House is responsible for the preventable deaths and suffering of hundreds of thousands, and some people, including Black, brown, Indigenous, disabled, older, immunocompromised, and those who are overweight, are viewed as disposable and less worthy of care.

August 3,
Mindset Matters: The New Wave Of Disability Culture Beyond The Americans With Disabilities Act
The next wave of disability advocates does not solely lie in the political arena, but rather in the realm of the artistic minds of their creators. Film and television are becoming the next platform for the evolution of disability culture. As we celebrate the 30th anniversary of the Americans with Disabilities Act (ADA), the community is facing a new set of challenges, a way to amplify the many voices and narratives that shape the disability experience.

June 16,
The American Association of People with Disabilities (AAPD) is proud to announce POWER: The Disability Vote.
The American Association of People with Disabilities (AAPD) is proud to announce POWER: The Disability Vote, a national, non-partisan disability and election virtual summit on June 22 and 23 from noon to 3:45 pm EST. Both days will include panels, presentations, and a national call-to-action to disability voters and allies. Please note, registration is free and you are able to register for one or both days.

Jan, 30,
Press Release – Disability Rights Activists Send a Message to Administrator Verrma: No Block Gants to Medicaid!
01/30/20 PRESS ALERT FOR IMMEDIATE RELEASE
For More information:
Kingsley Floyd: (617) 997-7519

WHO: DC Metro ADAPT
WHAT: Disability Rights Activists Send a Message to Administrator Verrma: No Block Gants to Medicaid!
WHERE: Health and Human Services Headquarters 200 Independence Ave. SW Washington
WHEN: January 30, 2020, 10:30am EST
Seema Verma, Administrator of the federal Center for Medicare/Medicaid Services, will release guidelines for states to follow in requesting block grant funding for their Medicaid programs Thursday, January 30th.
DC Metro ADAPT, as part of ADAPT’s network of grassroots disability activists, OPPOSE block grants in any aspect of the Medicaid program, state or federal.
“Block grant” is nothing more than a rationing system that reduces federal obligations to states while allowing States “flexibility” to “relax” or avoid entirely certain federal requirements and rules. These federal requirements are lifelines to people with disabilities, older Texans and people with chronic health conditions who are living in their own homes and communities, or want to do so.
Block grants target people with disabilities and people with chronic health conditions as “highest need beneficiaries” and limit the care available to us by restricting funding for necessary services and supports. These funding restrictions allow States to limit types of services, cap benefits, set funding caps per person and so on. Block grants set the federal funding for states at a level amount, offering budget certainty, but severely restricting any anticipated growth from people aging into the program, and with a tradeoff of the health, safety, and freedom of our people. Medicaid currently provides health insurance coverage, and in Texas, long term services and supports, all of which serve to keep people healthy and independent in their own homes.
DC Metro ADAPT is delivering a message to Administrator Verma at the HHS Offices at 200 Independence Ave. SW, Washington, DC at 10:30 EST, demanding the administration abandon efforts to block grant Medicaid, and begin a long-overdue conversation with the grassroots disability community to work instead on ways CMS can develop programs, policies, and supports for the integration of people with all types of disabilities fully into community life, including investment in community infrastructure and workforce development.
DC Metro ADAPT is joining ADAPT Chapters from across the country who are sending their messages of opposition to Medicaid block grants to the regional CMS Directors Thursday.
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Announcements Events and Opportunities in Maryland 2020

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Jan, 30,
The IMAGE Center of Maryland
Applications are now being accepted for this years Youth Leadership Forum!

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Other Artist to Check Out 2020

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Nov. 22,
VIA: @Mediadisdat
Kinetic Light Dancers Take Disability Arts to New Heights

The episode features American Sign Language by interpreter Angela Vilavong, who collaborated with interpreter Pilar Marsh. The voice-over appears in the integrated open captions (OC,) which are visible at the bottom of the screen. Audio Description (AD) includes a verbal description of the episode, with narration by Rebecca Singh. The Audio Description can optionally be downloaded as a separate audio file, and a transcript of the Audio Description and voice-over are also available for download to experience alongside the episode.

Nov. 2,
VIA: Art Ability
Saturday, November 6, 2021 ▪ 6:00 – 8:00 pm EST Virtual Celebration

With just 4 days to go before we celebrate Bryn Mawr Rehab Hospital’s community programs, Art Ability and Project SEARCH, we hope you’ll take a moment today to register to attend our Virtual Celebration on Saturday, November 6. It’s free to attend, but registration is required to receive the Zoom link for the live-streamed event.

Oct. 12,
Audio Description as a Creative Catalyst

Here at Unlimited, we believe access is not an afterthought and that accessible content can be approached in a creative manner. So we asked artist, curator and cultural programmer, Cathy Mager of the award winning Culture in Quarantine short ‘Sign Night’; a little about how audio description can enhance the creative process and how to best include audio description in your work.

March 3,
CAMPIX - Chad Alan Madson Photography


October 26,
Many thanks to artist Micah Bazant for creating this image just for #CripTheVote! Feel free to share! And be sure to check out and support Micah's artwork:

mage description: Illustration with large red text: "Crip the Vote" above two disabled queer people of color surrounded by flowers and radiating love. One person is Black, uses a wheelchair and a ventilator, and has a drink with a plastic straw on her tray. A butterfly is resting on her wrist. The other person is Chinese American, fat and uses a cane. Artist credit: Micah Bazant

April 8,
Let’s Explore with Cor Cor
Written By: Cory Lee & Sandy Gilbreath
Illustrated By: Amanuel Moore
Available July 26th, 2020

Feb, 19,
Reasonable Adjustment: the disabled radicals you’ve never heard of
An exhibition which highlights a little-known faction of the disabled people’s movement challenges assumptions and examines the tactics disabled activists use to fight back. Gill Crawshaw finds out what drives disabled people to take extreme action.

Jan, 30,
Dragons Love Tacos’ is a play for kids, so we asked a kid to review it
Oregon Children’s Theatre offers up some pretty good advice for when you’re faced with four hungry dragons – TACOS! The stage musical is a dance-filled journey into the field of “Dragonology,” with equal parts ridiculous fun and delicious whimsy.Owen Carey Photography

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Fun Suff 2020

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Nov. 8,
VIA: @Mediadisdat
THIS FOLDABLE WHEELCHAIR HAS A CONCEALED SEAT TO HELP THE WHEELCHAIR PUSHER REST


July 29,
Senior Citizens Recreate Iconic Music Album Covers While in Quarantine
Senior care facilities around the world have been under lockdowns since COVID-19 became a pandemic. Keeping spirits high during this time can be a challenge, which means that the activity coordinators for these places have to get creative with what they plan for their communities.

April 15,
MoMA Is Now Offering Online Art Classes for Free
The Museum of Modern Art (MoMA) isn’t going to let a global pandemic get in the way of it enriching the lives of art lovers. In addition to virtual tours of its vaunted collection, the New York museum is now offering free online courses as well.

Realizing that people may want to do more than just look at art, MoMA has launched a series of five free classes for those interested in better understanding the 91-year-old museum’s collection, according to i-D. Covering contemporary art, fashion and photography, the courses aren’t just a glorified video clips, either. Instead, they’re comprehensive beginner courses with corresponding readings and exercises that will take anywhere from 12 to 38 hours to complete.

Feb, 12,
A new Xbox adapter lets people turn their power wheelchairs into game controllers
The Xbox Adaptive Controller already expands the usability of Xbox for gamers with disabilities, and today, a third-party add-on takes that controller to the next level, allowing gamers to turn their power wheelchairs into game controllers. Called the Freedom Wing Adapter, the box connects the Xbox Adaptive Controller to a wheelchair through its 9-pin port. This means a joystick that controls a wheelchair every day can be turned into a controller, which is particularly useful for people who are already used to their joysticks and buttons.
The Xbox Adaptive Controller already expands the usability of Xbox for gamers with disabilities, and today, a third-party add-on takes that controller to the next level, allowing gamers to turn their power wheelchairs into game controllers. Called the Freedom Wing Adapter, the box connects the Xbox Adaptive Controller to a wheelchair through its 9-pin port. This means a joystick that controls a wheelchair every day can be turned into a controller, which is particularly useful for people who are already used to their joysticks and buttons.

Jan, 30,
Mother opens bakery to help son and others with special needs find employment
A common concern for parents of children with disabilities is what will happen when their children become adults. It’s difficult for adults with disabilities to find employment — not because they aren’t capable, but because they are often exploited or overlooked because employers think they aren’t capable. Increasingly, people with disabilities, or their families, are taking control of their own futures. One Illinois mom is the latest, opening a bakery for her son, and hopefully others with disabilities in the future.

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Wednesday, January 29, 2020

Sometimes The Bad Guy is Pious

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Originally Posted November 17, 2013


I think one of the biggest tools we can develop as a disabled person, is the ability to read people. Since we have trust them with so much, it would be so easy to get hurt. I am not just talking about financially, as far as that is concerned we are a perfect mark for an identitay thief. for me they only need to make a mess up X, or get a hold of my stamp.
Over all I am saying when you are disable, you have enough problems so why keep toxic people in your life. I started to have this ability as a young man, I would even rather go without help, than knowing it came from someone that I did not really like. To me, this was a way to protect myself from opening myself to the wrong people. I really think my art help me develop this tool as I spent so many years painting portraits and studying people faces. I always took pride that I could count my friends and people in my network on my hands.
As an single guy, it was easier to weed out people in your life as I wanted. In addition, I never had to voice opinion, or explain my feeling about people they just stopped coming around. This job is much harder to do as your family and friends expands, because there is a fine line being protective and seeming as an asshole! You want your feelings to be heard, if you express to much, people will stop listening and put blinders on.
Does anyone remember the Confucius justice act VS. pious? it was a diagram set up as a bulls eye and I think he was stating that every action might not be just, but one should make sure that their action were pious. A pious action is more important then a just act.
Even when you are trying to do the right thing, you might turn into the bad.

Tuesday, January 28, 2020

From CheckMate to Check

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Note to self: the genie can grant heaven, or hell!!!

January 28
Yesterday I had a meeting to renew my Self Directions plan and budget. It was me, Dena, Ayana (Support Broker) and Vanessa my Service Coordinator. We were all done, until we told Vanessa about Dena and I needing some time apart. This led us onto another conversation, they all agreed most people in my situation would not speak up if something is wrong, since I am so dependable on Dena. Really most people would not understand how reliant Dena and I are on each other. I looked down at my plan and said this means more than a marriage license, it is a road map of how we have taken care of one another. I told Vanessa the next few months will let us know if we get one big house or live across from each other as Freddie Mercury and his Mary!

January 19 at 4:16 PM
Thank you all for the good birthday vibes, they are much appreciated. We just had a home cooked meal by Wifey with Super Son and Daisy. They are the best kind of Birthdays, simple and fun!

January 1 at 4:23 PM
So Wifey and I had already made plans for New Years Eve last week. The past two days we did not know to keep them, or not and she kept looking at me for guildance. Yesterday morning I said why not go with our plan, it is what Bipolar people do. Really it turned out to be a wonderful night, just what we needed to remind us why we have been together for so long.
People often forget that relationship are master pieces that never end, they are always a work in progress no matter what. Sometimes noise is needed to be made to break a routine that may be comfortable for some, but really it not benefiting all parties.
I love you and thanks for a wonderful night Wifey!

December 31, 2019 at 11:02 AM
Dena Huggler-Keplinger and I would like to thank everyone for all of the support they have shown us in this time of sadness and change. We both agree maybe this process can show people it is still possible to be respectful to each other even when people disagree. We agree changes are needed in our lives, but did i really take the right path to enlightenment?

December 30, 2019 at 6:00 AM
This was not the easiest decision to make, nor I do not know if it is the the best one. I was at a speaking engagement and was asked "what was your greatest accomplishment", I looked over to Dena Huggler-Keplinger and said being with her.
I still feel that way to this day, although Dena and I will not being entering the new year as a couple our love is strong and will always be so. In this time of sadness and change, I ask everyone to be respectful and supportive to both of us. We both take credit for our successes and failures.
I view love as a butterfly: if you hold too tight you might crush it, but most of the time you need to let it go so it can thrive.
I will always love you, my Queen!

Friday, January 17, 2020

The Parents Coner

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Feb, 25,
The Burnout that Special Needs Parents Experience
I think most parents probably feel burnt out at some point while juggling all of the responsibilities that parenthood brings. It seems there is always a never-ending list of things to do, but never quite enough time to get it all done. Parents of special needs children have lists that are a bit longer, but still have only 24 hours in a day.


Jan, 17,
Parents of Kids With Disabilities Are Hard to Get Along With
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