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Thursday, April 5, 2018

Disability Movement in Maryland

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Oct. 22,
VIA: @MdDDCouncil
Request for Public Comments on the Development of the 2021-2022 IACC Strategic Plan for Autism Spectrum Disorder (ASD)

The Interagency Autism Coordinating Committee wants your feedback on seven specific issues. They want to decide if federal programs and activities and/or partnership with community organizations may help address those issues.

Oct. 14,
VIA: @MdDDCouncil
Training Curriculum: Law Enforcement and People with Intellectual and/or Developmental Disabilities

Recently revised by the Ethan Saylor Alliance Steering Committee, this downloadable curriculum is available to train law enforcement and first responders on how to appropriately and effectively interact with people with intellectual and/or developmental disabilities.

Oct. 4,
Baltimore County to unveil plan requiring landlords to accept tenants with subsidized housing vouchers
It really is not fair living in HUD housing and watching new development going up all around the place you have to live since it is the only thing you can afford. Some Land Lords/managers just make it worse when they do not put moneys back into the buildings and act as you should be grateful for what you have.

Oct. 3,
The Association for Positive Behavior Support is sponsoring an online “Family Chat” on Oct. 15 at 8:30 pm. Cohosted with Parenting Special Needs, the chat will focus on improving family-school partnerships with a parent panel.

Oct. 1,
The Hospital Patient's Bill of Rights goes into effect October 1, requiring hospitals to inform patients of a list of their rights as patients MD hospitals, which are now uniform across all hospitals in the state. Read the rights here: http://marylandpatientrights.org

Sept. 26,
I wonder if this will decrease the willingness to hire PWDs since employers always are looking to get more for less. The other thing to point out to employers is that we already have insurance. I wonder of other regulations will change too, because the more income a PWD has other services decrease and rent goes up. It is just an unless cycle of never being able to get a head.

June 21,
Baltimore Metropolitan Region Fair Housing Survey
The Baltimore region is currently conducting a study about residents’ housing needs and experiences living, working, or going to school in the region. 
This survey is an important part of improving housing choices. It is not associated with a ballot issue or political poll. It is expected that the survey will take approximately 10 to 15 minutes to complete. At the end of the survey you can enter a chance to win a $100 Visa gift card!   

 Jan. 29, 2018.
Lessons Learned is a day long opportunity to hear about the initial results from this 5 year statewide research effort to improve education and employment outcomes for youth on SSI. 

Dec. 5,
When: Thursday, December 6th at 11am-1pm
Where: Severn Library; 2624 Annapolis Rd, Severn, MD 21144

The Self-Directed Advocacy Network of Maryland (SDAN) is a support and advocacy resource for the nearly 1100 people self-directing their services through the Developmental Disabilities Administration (DDA). SDAN welcomes all community members who have an interest in fostering the self-directed services option and works to connect people who are currently self-directing 
to the community around them.

Oct. 25,
You can VOTE! Learn all about overcoming voting barriers for people with disabilities with @Tuesdaywithliz. Liz discusses how to get to the polls and how early voting might be the right option for you. #policy4all #DisabilityVote18


Sept. 18, 
The @Orioles will become the first team in American professional sports history to incorporate Braille lettering into their gameday uniforms when they host @NFB_voice on Tuesday! pic.twitter.com/EliPQkPuLI
Sept. 6.
The EMPOWER Care Act Would Give People With Disabilities the Freedom They Deserve


Sept, 5
ADAPT, ACLU, and NCIL are here to support the Empower Care Act that is being addressed during today's Energy and Commerce Committee hearing. The Empower Care Act is a bill that will extend which helps fund nursing home transition across our nation to


Sept. 4
 Maryland Developmental Disabilities Council shared an event.

Tomorrow, Wednesday, September 5 at 10AM, the House Energy and Commerce Subcommittee on Health will hold a hearing on the EMPOWER Care Act (S. 2227/H.R. 5306), which would reauthorize the Money Follows the Person (MFP) program for the next 5 years.
The Money Follows the Person program has allowed 75,000 seniors and people with disabilities access services that allow them to leave institutions and live in the community.
Disability rights organizations are inviting activists to join them at 9AM tomorrow at the Capitol South Metro stop (corner of 1st and D Streets, SE) where you can get a "HOMES NOT INSTITUTIONS" t-shirt, and then walk to Rayburn House Office Building for the hearing to show your support for the MFP program. 

Aug. 29
Hussman Center for Adults with Autism


Aug. 14,
University of Maryland announces new center for students with disabilities 


May 25,

Maryland parents battle with school districts to get special education services for their children


April 5,

Maryland legislature must scramble to help quadriplegic man from Bethesda, who faces losing his job because of MD law.

Together We Can Make A Difference! Please support Maryland's SB 660 and HB 1280 Bills. Time is running out. These bills will help ensure that WORKING PEOPLE WITH DISABILITIES CAN KEEP BOTH THEIR NURSING SERVICES AND THEIR PAYCHECK.
STATUS UPDATE: SB 660 unanimously passed the Senate finance committee. HB 1280 is held up in the HGO committee and needs to be voted out ASAP identical to the recently approved amendments within SB 660 bill. HB 1280 must be identical to SB 660 and not include any new house amendments creating additional legislative delays.

To assure this happens, please email or call Chairwoman Shane Pendergrass (shane.pendergrass@house.state.md.us & 410-841-3139) of the HGO committee and Speaker of Delegates Michael Busch (michael.busch@house.state.md.us & 410-841-3800) asking both of them to pass an identical HB 1280 bill that is identical to the approved SB 660 bill and approved SB 660 amendments.

Wednesday, April 4, 2018

Original Photo-Litho Prints

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4/6/93

Dear Wheelchair,

Our relationship is love and hate. I hate you because you have to be so picky about where you can take me. I love you because you save my knees from getting tired and sore.

I know you hate me because how I treat you. You probably think you are unlucky to be my wheelchair, I always put you in trunks of cars, under buses, in dark closets and take you camping. You would probably like to be somebody else’s wheelchair where you sit at home. Think how adventurous your life has been.

Yours,
Dan k.

P.S.

Wait until we go bungee jumping!

My Precious 2008 Good & Evil 2008
Nurture, 2008 No, 2008

The Disability Movement Then, Now and Future?

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Oct. 1,
Autism Act Clears Senate
A bill that includes more than $1.8 billion for federal efforts to address the needs of people with autism is headed to President Donald Trump.
The U.S. Senate unanimously approved the Autism Collaboration, Accountability, Research, Education and Support, or Autism CARES, Act, on Thursday.
The measure, H.R. 1058, ensures funding for research, prevalence tracking, screening, professional training and other government activities related to autism. It renews an existing federal law that originated in 2006 for another five years.


July 19,
House Passes Increase to the Minimum Wage, Ends Subminimum Wage for People with Disabilities

July 9,
 5 Easy Ways To Include Disability In Debates
I watched last week’s two-night “First Democratic Presidential Debate” while tweeting with other disabled people under the hashtag #CripTheVote. I’ve been doing this for various election events since early 2016. Unfortunately, we had to generate our own conversations because nobody in the debate mentioned disabled people or disability issues.

June 29,
To be honest, for years I kept forgetting what party I was registered to vote under. To me it really did not matter, because I would never be a 100% behind either party. I just picked the one that seemed to be more free spirited. When it comes down to it, I always vote for the person that will be best for my interests.

May 22,
Here's my sign that was taken as "evidence." I'd get arrested for fighting for attendant wages over and over again.    
I think the question need to be asked, why do agencies take so much of each clients budget for them selves? I have changed waivers and agencies twice and each time, I was able to give my staff a raises!


April 7,
Disability Hierarchy is Real and It’s Holding Us Back
I always felt this even as a  child, the ones that were  more independent got to do more special event, or projects. It was also thought as if you were a walker, you help the the kids that were in wheelchairs.   Even when I 17 and did my time at Voc. Rehab. I had to stay on the nursing unit, because I needed help with my hygiene needs. By this time I was living on my own for at least 6 months. Now as an adult, I see the "Disability Hierarchy" change due to the population of types disability change with advances in medicine.  It can also be what disable group has the better spokes person and spot light at the moment.  I think it comes down to the level of help we need and how much it cost, just because I cannot feed and dress myself does not mean my value as a person should be any less.

March 7,
Show disabled people in stories, authors urge on World Book Day 

March 5,
The Festival of Rest & Resistance is here! Tonnes of shows, events, discussions and installations. Curated by Jess Thom of @touretteshero The Festival celebrates our commitment to becoming a relaxed venue and aims to provoke, disrupt and inspire change > bit.ly/2U9pnQV


March, 1,
Social media backlash forces Walmart to alter policy involving disabled workers

Feb. 22
Walmart Greeter with Cerebral Palsy Hopes to Keep Job

Feb. 11,
$1B autism bill would bolster support for those who 'age out'  

Oct. 31 2018,
“My disability is not that something’s wrong with me, it’s that the world has not adapted to me,” Pittsburgh disability advocate Alisa Grishman said.

Sept. 24,
Down Syndrome community calls for Netflix to remove comedy special for ‘hate speech’

Sept. 6,
It’s Time for a National Museum of Disability 

Aug. 13,

"With less than three months until the Midterm Election on November 6, now is the time for disabled voters to take the #CripTheVote Challenge. Pick three disability issues you care about most, and ask candidates about them." 
 
June 13,

Delay Sought For Medicaid Caregiver Check-In Mandate
If this is the GPS system that alarms when the provider and client goes off when they are farther then 5 miles from the home, it should be thrown in the trash. That is the system they have in Ohio and in my opinion, it is like have an ankle bracelet.

“Congressional lawmakers have introduced bipartisan legislation to delay for one year a controversial Medicaid requirement that personal care service providers electronically check in when assisting people with disabilities in their homes.”
 
May 29,

"For anyone who asks why you would get a citation for parking in the striped area in a handicap zone, THIS IS WHY!!!"
 May 21,

Medicaid cuts put Montana's disabled in emergency situation


April 30,



April 16,

Filing an #ADA Complaint is Easier Than You Think


April 12,

Sen. Tammy Duckworth Saves the Americans With Disabilities Act—For Now 


Proposed rollback of Americans with Disabilities Act is permanently stalled #handsoffADA


The Seventh Circuit Just Made It Harder for People With Medical Conditions to Keep Their Jobs


April 10,

Disability rights movement's legislative impact sprang from on-campus activism


April 6,

Happy 41st Anniversary 504 Sit-In

Photo – Adam Bertaina, who at the age of 4 1/2, was the youngest 504 Sit-In demonstrator.

Adam (October 29, 1972 - July 11, 1992) is shown here at the Disabled Peoples’ Civil Rights Day March and Rally in San Francisco, October 20, 1979. He is in a row of little kids in wheelchair strollers, some with helium balloons. There is a large picket sign facing forward on the back of his stroller that says: 



April 4,

Lawmakers Band Together To Defend ADA 
U.S. Senate Democrats are vowing to block legislation that would dramatically alter the Americans with Disabilities Act.