Thursday, September 20, 2018
Sunday, September 16, 2018
America will always be a work in progress, because that is what it is to be human. just because someone is voted to be our leader does not mean they have the perfect answer and no law is without it's flaws. That is why I voted since the age of 18, so I could be part of the debate and hopefully shape the world into a better place. I might not see the effect in my life time, our jub is to give guidance for future generations.
Wednesday, September 12, 2018
In preparation for the hurricanes, @CMSGov developed a set of tools on the strategies available to support Medicaid operations and beneficiaries in times of crisis. You can view them here:
Hurricane Florence and Disaster Housing Recovery
Disaster Safety for People with Disabilities (Red Cross)
Hurricane Preparedness for People with Disabilities | FEMA.gov
Disaster and Emergency Planning: Seniors and Disabled
Federal Emergency Management AgencyFrom Wikipedia
evacuating populations with special needs - FHWA Office of Operations
Tuesday, July 10, 2018
Monday, July 9, 2018
Saturday, July 7, 2018
Art is Like Playing Monopoly As some of you remember I was represented by the Phyllis Kind Gallery for many years, this was a good time in my life. The Oscars just fell into tour laps and HBO wanted to connect me to a gallery, that is how Phyllis I crossed path. From the moment we met, she referred to my work as my children. Really, each art piece is a child, the seed is the idea and they bloom into their own identity as we work on them. Phyllis had the philosophy of finding the right buyer for each piece. I was off to a good run; my first solo show was a huge success. Then 9/11 occurred and understandable other things took precedence to art. I always knew art is more of luxury in life, face it I never did art for the money that is more of a bonus. Over the next few years I had two more solo shows at the Kind Gallery.
Then in 2006, I got a call no Artist would ever what to receive. Time to come pick up your work because the gallery is moving to a smaller place. To me this is mix emotions since my work is going into storage, but at least I have the opportunity to get my kids back. Whoever has taken an Art history class, has heard many stories about galleries closing and the Artist can’t find their work. Interesting enough when Dena and I went to pick up the kids, Phyllis kept a hand full of my work. To be honest, I was frustrated that they kept the prints that I worked on in the summer of 2002. That summer I basically took over the print shop at Towson University and hired Dawn, Jessica and Brian to run edition for me, thanks to Tonia Mathews. All of women/men power and supplies were out of pocket, I think you would see why I would be worried about what happened to the editions. For the next dozen years, I had no idea of what happen to Phyllis, or my work. Even the producers of King Gimp could not get through to the gallery.
Two weeks ago, an email popped up in my inbox from Phyllis’ daughter, saying the gallery is finally closed and would I like to come get the rest of my work? Right away; I’m reply yes and I am thinking self, the flipping prints! I wanted to ask about how Phyllis is doing in person. Last Saturday Dena, Daisy and I packed into our van and set out for NYC. When Dena and Rachel put the first load into the van, I did tear up. This is not only the end of a chapter in my life, but an end of an era in the Art world. As they finished loading the work, Rachel says it must feel good getting your children back. I know that is something her Mom would say, I hope she is having a relaxing retirement living on the West coast. Before we headed back home, I asked Rachel to please kiss her mom for me. As we were heading home, I asked Dena; honey do you know what we have here? This was Phyllis’ private collection of my work. You know she handpicked what she wanted to keep, because she knew it’s value. Rachel said as she was moving my work to lobby, people ask if it was for sell. The thing about art, the Artist know it’s value, people like Phyllis tell you it’s value but there is no proof unless people see the dollars flowing.
Thursday, July 5, 2018
This is one of many emails I receive from students and educators to share my view about living as a person with a disability.
What do you talk about in your motivational speeches?
I mostly tell stories from my life, a lot of is related to living as a person with a disability but really they can relate to everyone. We all have challenges in life, but I want to show people there is always a way to get over them. If one way is not work try another, it is okay to ask for help. I also talk about find your passion in life, because they become asks of kindness that can change our world for the better. Even the smallest can change a life for the good.
How do you communicate in different ways?
The biggest one is my art, I do a lot of social media to keep up with disability topics and to put my thoughts out for people to think about. I really am not one to talk about my daily life on it, but put out a lot of my art and things that I feel passionate about. I feel like social media has open a new world of communication for the disabled community.
How has cerebral palsy affected your life? How do you express yourself?
Having CP is just about doing things differently, I can do what ever I want just with twist. It is a life style that chose me, it might take longer to do things but I get them done. If might take me twice as long to have a conversation in the end my thoughts may be valuable then others.
What is your belief about cerebral palsy?
I still feel that I do have CP, but it does not control me. It does present more challenges in life, but CP is just part of my personality and help lead me down the path I am taking in life. I have never asked why I have CP, or if there was a way to fixed it. Once I was visiting a school and a student asked me the magic pill question to take away my CP. I replied, I would not take it because having CP is only way of life I know. To take away my CP would be like dropping off to live on another planet
Friday, June 29, 2018
It seems as respect and working together are vanishing terms in today's society. Another reason to move to Europe, Pets are welcome at a lot of places. That was the best chilling out at Cafe's with dogs being lazy under the tables. The time we where in Chile, we sat at a picnic table all day and our neighbor's dog would come for morning coffee and beacon and check on us through out the day. Our Country just needs to chill out, maybe that is why more States are legalizing pot.
Saturday, June 23, 2018
Disability Groups Line Up Against Trump Supreme Court Pick
Trump Team May Change Rules on Jobs for Students With Disabilities
One of the few good things to come from this mess.
Kennedy’s Retirement Will Leave the Rights of People With Disabilities in Danger
Trump administration takes another major swipe at the Affordable Care Act
Statement in Response to Trump Administration Proposal to Combine Education and Labor Department
Plan to merge Education, Labor departments is just more 'hot air' from Trump administration
Thursday, June 7, 2018
If I had the money, I would invest in property to run water and electric hook ups all through out the place. I have been seeing a lot of these types of blogs.
It is a great idea for many reasons, consider the amount of money PWDs throw away on just renting. Also the fact that we live in one place for most of our lives due to affordability. Would buying tiny houses also save tax payers money, if programs were setup to buy, rather then live 40-60 year in subsidized housing?
I am sure people still have to rent the land to park just as a trailer park. The tiny option may be the way for PWDs to be included in the latest housing trend. I think it would cool to start a Gimp commune.
Friday, June 1, 2018
This is the end of the the era, because this means schools will stop teaching photography using film and all of the good stuff that comes with this medium.
Although, I too do more digital stuff now, it will never replace the feel that comes with older mediums. In the digital age of art the possibilities seems unless, but I do feel a disconnect from my work. When I paint, or draw I become part of the piece. The canvas and my body the absorb the some colors, my DNA is left on the canvas. If not from scraping my knuckles, it's my sweat and drooling. Really this is how they will identify a Keplinger, not from a signature, but from DNA.
Maybe to me digital art is as air sex, it's fun and safe, but does it have soulful connections?
Wednesday, May 30, 2018
Words count, whatever you put on social media represents you. You cannot undo your thoughts by pushing delete or calling it a bad joke. Once again Present Trump has a opportunity to condemn hatred in our country, but he plays the victim card.
I am all about freedom of speech, but you also of to be prepare for the consequences for this freedom when you act like a bully, or a racist.
Tuesday, May 29, 2018
I say Bravo to the two men that had to experience this miss justice at a Philadelphia Starbucks. They could of chose a difference path and not used this as an education opportunity, but is it really enough?
I have been in this situation myself being a person with a disability and it is an endless battle to change how people perceive different minorities. A few hours of training might change the attitude of one, or two people, but the really goal is to creative new believes and values that everyone is equal.
how can this be accomplished when President Trump does not embrace the diversity of our country? At the end of day this seem to be a good PR move by Starbucks, but how people will remember the names Donte Robinson and Rashon Nelson, who want to create change.
Wednesday, May 16, 2018
Misstress Apple has been miss behaving for a while and I was getting no where with Apple support. I cannot press command + R to reboot in recovery mode. So I just erase and reinstall my hard drive, it was for the best anyway.
The thing is when you reinstall your software things are not the some. For example, in Photoshop you have to download the old brushes. Thank God for Youtube college, you can find out about everything on there. At the same time, I do like the new organization of the brushes in Photoshop. This is way I call my computer Misstress, the line is very fine between pleasure and pain.
Friday, May 11, 2018
This year Richard his family invited Dena and I to the Cerebral Palsy Foundation's Design For Disability 2018. This is the perfect example of how I say art is about solving problems. Although, I do not understand one thing about fashion, they are still meeting my interpretation of being an artist. When you have been a chosen one to be a PWD clothes just do not fit , or function ass you need them too.
As part of this project, the designers get to work with a mentor and one of them was Anna Sui! Here she is as she talks about seaming, pleading, and charring when it comes to designing clothes for people with disabilities that allow for more movement. The Cerebral Palsy Foundation's #designfordisability gala fashion show is tomorrow!! We can't wait to show you what the designers from Fashion Institute of Technology, Pratt Institute and Parsons School of Design have in store for you!
For more on the event: http://yourcpf.org/gala/
For me the real event was the after party, since Tom could introduce to
@micahdfowler and @Zachanner, I know some how this should be the next Marvel. Come on, what the hell does Xavier have that we do not? This was like a meeting of the CP families as in the God Father, the next this happens we should take over the White House.
Zach and I could not believe Josh Blue was not there, the collection just was complete with out him!
So we decided to call his ass, so he could feel as part of the team.
With all the fun aside. I feel as every generation of CPers needs their voice; I feel like, I can speak for my vintage because I know what life was like for us at that time. Someone always has to put down the footer, but the same guy does not get to put the trim in.
Saturday, May 5, 2018
2018 Easterseals Disability Film Challenge Finalists: Best Awareness Campaign
Film Challenge aims to change view of disabled
Thursday, April 26, 2018
The idea is to go to college and use the whole campus as a tool to grow, but most time each department keeps to it's self. This was not the idea Smoot took when he brought me to SVU, because funds were tight and ultimately he wanted everyone to share my story. I think he got funding from 5 different departments and offices. This only meant that he had to share me and not keep me chained to the press(joke) we did three speaking engagements last week. it was tiring, but to me that is how it should be. my story does not just fit into one box and needs to be shared with the world.
Its good to be home, but now the withdraw kicks in thinking about the wonderful week we just had reconnecting as a couple and with old friends. Although Wifey and I did not have much time to our selves, we did make the best of it. more importantly, it was how she showed her support of wake up and getting me to the studio to make the most of my week. I would really to THANK Smoot for making this happen, he did not only take care of my as a friend and artist, but as a business man. Smoot pulled a lot of people together on and off of campus to make this possible.
He also pull together a wonderful team of students to help me produce new work, this week was more about that. It was about growing as people and artist and learning that everyone has something to contribute in their own way.
Monday, April 23, 2018
Couple with Down syndrome: 'Love is love'
Take a look at this heart OFFICIAL TRAILER
Saturday, April 21, 2018
Are you passionate about disability rights? Are you passionate about writing? If you answered yes to both questions, we want YOU to apply for the new Rooted in Writing Fellowship! Applications are open now through May 21st, so what are you waiting for? Apply now!
Shaquem Griffin drafted by Seahawks, becomes first one-handed player picked in #NFL draft modern era
I would like to put a back on the drive seat and straps on the foot pedals, I could drive Wifey around for once. She still is not brave enough to ride on the back of my power chair.
5 Tips to Tackle Wheelchair Hiking
I used to used fish tank tubing, since I could reuse it and it would not gimp mashed from biting on it. We could also cut it for different lengths, coffee pots, pitchers of hot tea, beer bottle, shot glasses...
Now i use silicone straws, I wonder if is a little better then plastic straws, since they are reusable?
People often ask me, what do OTs do? So far the best description I come up is that they are the general contractors of the Disability Community.
Thursday, April 19, 2018
VIA @arts_sped Our annual conference 'sells' out fast. Don't let that discourage you. We have a waiting list every year, and we are always able to get some people in. That being said - don't delay! artsspecialed.org
Kennedy Center and National School Boards Association Award 2019
@ArtsAccessVic has announced the inaugural Stella Young Award, a $3,000 prize for a young Australian artist with a disability who has demonstrated significant impact in disability activism through their artistic practice. Entries close Friday 25 May. Apply here!
Are you a young artist with a disability? Does your artwork bypass the ordinary & challenge the predictable? Apply today for the
2018 Art Ability Call for Entry is now open. Deadline for submissions: Wednesday, July 18, 2018