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Wednesday, May 17, 2023

Having a Disability is a Full-Time Job

Having a Disability is a Full-Time Job
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This week I started using the Evvie system in Maryland before getting penalized for being the rebel I am. I can already tell this new system of keeping track of my care hours will be a pain in my ass than anything. I like that it calculates my hours, but other than that, using this system is like having a full-time job.

With paper time sheets, I only had to worry about them on the due date, and I could cut and paste stuff. With Evvie, it is another daily task clocking in and out and then approving each shift. The Annkissam App only records the hours worked, and with this, you have to be very precise, down to the last minute, or it will blow your budget out of wack. In the next step, the employee and the participant must log into the Evvie portal to approve each shift for each employee.

Even with myself being a wizard on the computer, these are tasks that I should not have to worry about!


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Thursday, April 6, 2023

Disability Resources in Maryland 2023

Disability Resources in Maryland
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April 6,
VIA: @MDODSecretary
Low Interest Loans for AT
The AT Financial Loan Program offers:

Low Interest rates, always below prime
Extended repayment terms
Lenient lending parameters
Easy online application
$500 -$10,000 for general AT purchases
Up to $20,000 for Home Modifications
Partnership with CASH Campaign of MD for financial counseling and coaching

For more information, contact the Maryland Department of Disabilities, AT Financial Loan Prog/ram at 1-800-832-4827 or email mdtap.atlp@maryland.gov.



Friday, November 11, 2022

Fun Stuff 2023

fun stuff 2023
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November 11,
Website Launched To Find Accessible Nature Spots In South Jersey

Disability Rights New Jersey (DRNJ) protects, advocates for and advances the rights of persons with disabilities in pursuit of a society in which persons with disabilities exercise self-determination and choice and are treated with dignity and respect. Readers can learn more at www.disabilityrightsnj.org.

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Monday, November 7, 2022

Things to ponder 2023

Things to ponder 2023
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April 20,
If Birth control was an option for men, would we even be having this debate?

When Roe VS. Wade was overturned, it took away the freedom of choice of how women can take off their bodies. This would be like telling me I must take medication to control my movements because that is more acceptable to society.


March 21,

March 15,

February 2,
If buildings can be grandfathered, so they do not have to be ADA-compliant. I want the right so I do not have to use the Annkissam App to keep track of my PCA hours.

January 11,
Are you officially over the hill when you send off your Cologuard box? Now they lowered the age to 45, so…

December 18,
Here is part of an email I received Friday, the 16th, at 2:24 pm, and the subject line is: IMPORTANT: Participant Background Check Preference Due 12/20/2022. Whoever came up with this timeline is real, Ebenezer Geezer!!!


November 7,
VIA: @DAWNcil
“Never assume a person who has difficulty communicating has nothing to say.”
-Stacy Sekinger

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Thursday, November 3, 2022

The Disability Movement Then, Now and Future 2023

The Disability Movement Then, Now and Future 2023
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November 8,
New Voting Laws Add Difficulties for People With Disabilities
Restrictions in several states on mail-in voting are sending more people with disabilities to the polls. What they find isn’t always easy to navigate.

November 3,
No matter how much I have read about Ableism, I still do not have a clear understanding of what it means. Maybe it is a generation thing, really at this point I can only speak for my age group and try to keep myself informed of how the disability movement is changing in today’s world.
Working Definition of Ableism - January 2022 Update
Previous definitions and additional context can be found here (2021), here (2020), and here (2019).

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Monday, October 24, 2022

Interesting Disability Articles 2023

Interesting Disability Articles 2021
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October 26,
Museums are increasingly making accessibility a priority, but without a clear blueprint for how to advance it, it can be difficult to know where to start. Here are some suggestions for finding your entry point.

Over the past decade, conversations about accessibility have increased within the museum field, and many organizations including AAM have identified it as a priority. There is not, however, a straightforward and approachable blueprint for increasing accessibility, meaning the museum workers tasked with doing so are often left wondering, “How do I get started?”

Heather Pressman and Danielle Schulz wrote The Art of Access: A Practical Guide for Museum Accessibility to answer this question and support museum practitioners on their accessibility journeys, regardless of the size, budget, or scope of their museum, by providing a range of starting points. Here we share three main guiding principles that every museum, regardless of size or focus, should keep at the forefront. Additionally, we highlight the work of three museums—The Henry Ford, the Intrepid Museum, and the Nelson-Atkins Museum of Art—to shine a light on exciting ways accessibility and inclusion have been integrated into programs and evaluated.

October 24,
VIA: @AndrewPulrang
The Squeaky Wheel Shows How Disability Humor Work

After months of preparation and content creation by founder and Editor-in-Chief Steven Verdile, The Squeaky Wheel went live in June 2021. Its look and feel are similar to that of The Onion, but with a disability perspective. The Squeaky Wheel has a news website format. Its headlines are funny in themselves, with the jokes further fleshed out by short articles, supplemented with clean, professional, entirely anonymous stock images. Everything is presented as perfectly normal, told with a straight face. The disability-based anger, confusion, and humor are all implied.


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Thursday, October 20, 2022

The Disability Movement Under The Biden Administration 2023

The Disability Movement Under The Biden Administration
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October 20,
Congress has again failed people with disabilities — we need bipartisan legislation now

When the Senate unveiled its reconciliation package in August, service providers for people with intellectual and developmental disabilities (I/DD) were stunned to see additional funding for the Medicaid Home and Community Based Services (HCBS) program was excluded — even despite the fact that HCBS funding was proposed by the White House and faced no opposition from Senate Democrats.

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